Topic: Lupus Info?
April 26, 2019 / By Elam Question:
My mother was diagnosed with lupus years ago and I've been searching around for ages for any good information on it. I have come up with nothing. The big lupus foundation sites are a joke and nothing on it has been updated in at least 5 years. Along with everything else I've found.
So anyone have any good inforation or know where I can find anything?
Carlisle | 5 days ago
Hi Im Chris, I have SLE Lupus, Own a support group, and know as fact info for Lupus has not been updated since 1982. I will try to help. They are making strides, but slowly, other diseases get more attention, the Sad fact is a Major Celebrity or prominant person needs to experience this before it gets the attention it and other autoimmune disorders deserve and need.
ok, Lupus is in fact an Autoimmune disorder. It is Chronic, while there is no cure people have periods of remmission and what is called flares (when the disease is active)
Lupus can range from very mild, where life disturbance is minimal, to life threatning. However 10-15 years ago, it may have been an automatic death sentance. Today that is not the case. In fact I have a moderate to severe case, treatments have been saving my life for years.
When mild or not very active, where maybe your joints hurt a bit, or you are running a slight fever, you may be given anti malariel drugs. These include plaquinil and qunine (my spelling is off, and Yahoos spell check isnt very good, so sorry). For many these medications can hold a mild to moderate case for many years. My mom takes this class of medication for mild autoimmune Polymyalgia Rhumatica.
If and when the disease progresses, they do begin treatments to slow the bodies immune system from attacking itself. Some of the medications for this include prednison, and other medical steroids, immunosuppresents like Imuran, which are actually used in people who have had Kidney, liver transpalnts, etc. But do help in supressing a Lupus problem.
In some cases they give forms of chemotherapy from mild to IV. The ones Iv'e used are methotrexate (hard on liver), to Cytoxin, much stronger and done orally or by IV. I finished IV Chemo 3 months ago, and am going into remmisson.
Diet seems to be an important factor, as well as femal hormones like estrogen. The pill or hormone replacement therapy is not suggested, it can bring on flares. In fact I have polled my support group. Many have had hysterectomies rather young (mine 29), or suffer horrid menstrual cycles.
including endometriosis, Cysts, and heavy bleeding.
I know that in between flares I live a pretty normal life, and tend to do some normal activities, but my lupus is enough that I recieve Social Security, which at first is hard to recieve, and many people in my group have to get an attorney to recieve. I got mine many years ago, it was easier then.
Lupus is NOT a Death Sentance, but should be followed closly by a specialist called a Rhumotologist. I see mine monthy to every six weeks. I/ and others also use a special medical team, depending on a persons ailments. these can include dr's in Nuerology, Kidney specialists, Gastrointestinal drs, Pain Specialist (most are ex anasteseologists), sometimes Physical Therapy may be needed, as well as various types of psycologists, Psychitrists, etc.
If you need more info ask more I can provide specific info
Hope this all helps
Not to fear! My ex has Lupus and does simply pleasant. It's an car-immune ailment that impacts exceptional organs. I'm no Doc, however that is the way in which I comprehend it from my ex. Don't simply take the Doc's phrase for it despite the fact that! My ex stated they identified her with approximately 20 different illnesses that experience identical indicators of Lupus earlier than they figured it out. She takes everyday meds, physical activities, eats proper and feels pleasant! Lots of assessments! Good Luck!
There are a lot of good books on Lupus. Check out your library or a good book store. My mother in law has both types of Lupus, the skin disease and the one that basically distroys your body from the inside out. She has major kidney and lung problems right now and takes twenty three pills a day. It really sucks. I hope that your mother has a good doctor, the ones where we live don't know crap and she has to go to Dallas or Houston once a month! Good Luck!
Hi : )
What a wonderful daughter you are to learn more about your mom's illness!
Systemic lupus erythematosus (SLE), commonly referred to simply as lupus, is a chronic inflammatory disease. It can involve many parts of the body, including the joints, skin, kidneys, blood vessels, heart, lungs and central nervous system. It is not contagious.
SLE is an autoimmune disorder, meaning the body mistakenly attacks itself. The immune system helps protect the body by making antibodies, which are cells that attack foreign substances such as viruses and bacteria. Sometimes, however, this system malfunctions and creates abnormal autoantibodies that attack the body’s healthy tissues. This causes inflammation, vasculitis (damage to blood vessels) and organ damage due to a buildup of immune system cells.
Like many autoimmune diseases, SLE is also categorized as a connective tissue disorder because of its effect on bone, cartilage and other connective tissues.
The Lupus Foundation of America estimates that 1.5 million Americans have some form of lupus, including about 1 million with SLE, and that more than 16,000 Americans develop lupus every year. However, the Centers for Disease Control and Prevention (CDC) states that the number of Americans with lupus can be conservatively estimated at 239,000.
There's lots more, easy to understand information on SLE at this women's site. I think you'll find it helpful!
Originally Answered: Anybody have any info on a Pelvic Inflammatory Disease?
This is the common problem in women.The causative organisms include vast majority including M. tuberculosis,N. gonorrhoeae,C. trachomitis etc.It can be a case of acute Pelvic Inflammatory Disease (PID) or a chronic PID.
Modes of aquisition:
1.Most commonly the organism ascend through vagina and reach upto the overis through cervix,uterus,fallopian tubes.It's usually aquired after sexual intercourse with an infected person or may occur spontaneously.
2.Also from adjacent organs like appendix,intestines while they are infected.
3.Very rarely blood borne infection may occur as in tuberculosis
depending upon the site infected it can be salpingitis (fallopian tubes) or Endometritis (uterus).
Salpingitis is most important as it causes inflammation,edema,loss of cilia and cause adhesions into the leumen of tubes as well as around the tubes and lead to infertility.
Ovaries are invariably involves forming tubo-ovarian mass.The infection can spread to other pelvic organs by outpouring the pus that is formed in F. tubes through the fimbrial end.
In acute case the woman has complains of acute inflammation such as pain in the lower abdomen,fever,foul smelling discharge through vagina etc.
On per speculum examination,the vagina,cervix are inflammed,lots of foul smelling discharge is present.
Abdominal examination may show tenderness,muscels are contracted (guarding and rigidity).
In chronic inflammation the woman usually doesn't have any complain other that chronic,vague pain in lower abdomen or backache.She may also come directly with the complain of infertility only to reveal chronic PID after investigations.
Haemoglobin,total leucocyte count as a routine.Diabetes has to be ruled out.High vaginal swabs are taken for culture and sensitivity.Also blood sample may be used for culture and sensitivity in case of blood born infection.Abdominal ultrasonography has to be done.Laproscopy helps to identify the extent of spread of the disease in ajscent organs,adhesions of fallopian tubes to adjacent organs,involvement of ovary etc.
Also thorough search for the source of infection has to be made and it has to be treated too or relapse may occur.
Acute PID had to be treated on with antibiotics,maintenance of hydration,rest.Drainage of the abscess if it has formed is important
Chronic PID usually has bad prognosis as the disease has already progressed to such as extent from where recovery is impossible.The woman has to resort other way for pregnancy if she wants.