Has anyone had trouble diagnosing a digestive disorder, such as Irritable Bowel, Celiac, or Crohn's?

Has anyone had trouble diagnosing a digestive disorder, such as Irritable Bowel, Celiac, or Crohn's? Topic: Has anyone had trouble diagnosing a digestive disorder, such as Irritable Bowel, Celiac, or Crohn's?
June 17, 2019 / By Benaiah
Question: Ever since I was little I've had problems with digestion. I originally thought it was lactose-intolerance, and my GP told me to take Lactaid pills. They worked at first, probably psychologically, then stopped working and was still having frequent discomfort. Now that I'm 19 years old and Still having problems, I found a gastroenterologist. He scheduled me for bloodwork and a colonoscopy. Today he did my scope, but he hasn't seen the blood work yet. He says my colon looks fine and suspects I have Irritable Bowel Syndrome. However when I looked up the symptoms for Celiac disase, I have all the symptoms except for osteoporosis, which my mother has. ( We both have digestive issues, as well my her brother/my uncle) I'm almost positive that's what I have just basing it off that, but my doctor says I've been looking at the internet too much, and that what the internet says is Wrong... Has anyone been in a similar situation?? IS the internet, in fact, a Bad reference, even though Every website has the same symptoms listed??? Help!
Best Answer

Best Answers: Has anyone had trouble diagnosing a digestive disorder, such as Irritable Bowel, Celiac, or Crohn's?

Aarron Aarron | 1 day ago
The internet is a great reference but does not replace doctors. The other problem is that you can see the symptoms of a lot of diseases and think you have them. First year medical students have that problem too. Anyway, the symptoms for IBS, celiac disease, and Crohns are very similar. If you and your mother have the same type symptoms, you should both get tested for celiac disease. First of all, a colonscopy will not get the scope into the small intestine where the damage is done by celiac disease. You need to have an endoscopy done which gets a scope into the small intestine. Go to the website www.csaceliacs and see if there is a support group for celiacs near you. They will know what doctors to work with to get diagnosed with or without it. Doctors open to looking for celiac disease are also going to generally be better at differentiating the different conditions. (In the US, it generally takes 8 years to get a correct diagnosis if you have celiac disease since doctors don't look for it and it mimics other problems. It is estimated 1 in 133 people have it) The other thing to consider after you get tested, is to try a trial gluten free diet for 3 months and see how you feel. This will rule out non-celiac gluten intolerance (think of it as pre-celiac) or a gluten/wheat allergy. Good luck and hope this helps!!
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Aarron Originally Answered: irritable bowel syndrome?
I don't have all the answers, as I still have discomfort at times, the medication (can't remember the name) didn't work for me, as I have bouts of diarrhea and bouts of constipation. I have noticed that things that have artificial sweeteners in them, i.e., aspartame, even gum, will make it worse. I try eating the same types of foods at the same times each day so my body knows what to expect and will eventually be trained in dealing with digestion of those foods. Below is a link I commonly refer to for all my health needs. It gives you home remedies for dealing with any ailment. Type in Irritable Bowel Syndrome in the search bar, it will provide many links.

Sheryll Sheryll
Welcome to the club! I have been doing a lot of reading on IBD/IBS lately because I have been having similar symptoms since December 20th when I ended up in the ER. Doctors don't know what causes IBS and can only do so much to try to relieve the symptoms. Unfortunately I think there isn't enough research done on this (Several people in my family suffer from IBD/IBS too) You might talk to your doctor about doing an elimination diet to see if you have any food sensitities or food allergies that may be causing your problems. In the meantime, you might try eating coconut. Dr. Joe Gradon (of the People's Pharmacy) has written that many people have found relief from eating coconut, to help with digestive problems.
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Perlie Perlie
Unfortunately YES the internet shouldnt be used for self diagnosis.WIll I tell you why you dont have coeliac disease>>Because the colonoscopy would have shown damage to the villi of your lower intestine.This hapens in the disease as the villi become flattened and irritated and this is easily seen on a scope. Its very likely that it IS IBS(i have it too:)welcome))hope youre ok x
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Marlee Marlee
I do have IBS, although for my weight loss is still a question mark there. You could be having celiac or ibs. Let the doctor rule out. It's best to ask him the questions. He's the right person to provide you the answers.
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Krystina Krystina
My partners sister has been diagnosed with Chron's on and off by specialist that the medical profession may not be able to diagnose concisely. Do not try and diagnose yourself, Gather info from the internet but do not be a hypochondriact (not suggesting that you are).
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Krystina Originally Answered: Irritable Bowel Syndrome ?
Irritable bowel syndrome (IBS), also called spastic colon, is a functional bowel disorder characterized by chronic abdominal pain, discomfort, bloating, and alteration of bowel habits in the absence of any organic cause. In some cases, the symptoms are relieved by bowel movements.[1] Diarrhea or constipation may predominate, or they may alternate (classified as IBS-D, IBS-C or IBS-A, respectively). IBS may begin after an infection (post-infectious, IBS-PI) or a stressful life event. Other functional or pain disorders and certain psychological conditions are more common in those with IBS. Although there is no cure for IBS, there are treatments which attempt to relieve symptoms, including dietary adjustments, medication and psychological interventions. Patient education and a good doctor-patient relationship are also important.[1] Several conditions may present as IBS including celiac disease, mild infections, parasitic infections like giardiasis[2], several inflammatory bowel diseases, functional chronic constipation, and chronic functional abdominal pain. In IBS, routine clinical tests yield no abnormalities, though the bowels may be more sensitive to certain stimuli, such as balloon insufflation testing. The exact cause of IBS is unknown. The most common theory is that IBS is a disorder of the interaction between the brain and the gastrointestinal tract, although there may also be abnormalities in the gut flora or the immune system.[3] [4] IBS does not lead to more serious conditions in most patients.[5][6][7][8][9] But it is a source of chronic pain, fatigue and other symptoms, and it increases a patient's medical costs,[10][11] and contributes to work absenteeism.[12][13] [edit] Diet Many different dietary modifications have been attempted to improve the symptoms of IBS. Some are effective in certain sub populations. As lactose intolerance and IBS have such similar symptoms a trial of a lactose free diet is often recommended.[75] Fiber supplements have not been found to be effective in the general IBS population.[76] They however might be beneficial in those who have a predominance of constipation. Definitive determination of dietary issues can be accomplished by testing for the physiological effects of specific foods. The ELISA food allergy panel can identify specific foods to which a patient has a reaction. Other testing can determine if there are nutritional deficiencies secondary to diet that may also play a role. Removal of foods causing IgG immune response as measured using the ELISA food panel has been shown to substantially decrease symptoms of IBS in several studies.[77] There is no evidence that digestion of food or absorption of nutrients is problematic for those with IBS at rates different from those without IBS. However, the very act of eating or drinking can provoke an overreaction of the gastrocolic response in some patients with IBS due to their heightened visceral sensitivity, and this can lead to abdominal pain, diarrhea, and/or constipation.[78] Several of the most common dietary triggers are well-established by clinical studies at this point; research has shown that IBS patients are hypersensitive to fats and fructose.[79][80]

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