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i have lupus pls help me!?

i have lupus pls help me!? Topic: i have lupus pls help me!?
May 27, 2019 / By Arin
Question: Ok I am currently 19 weeks pregnant. Before this pregnancy I had 2 miscarriages but all before 9 weeks. They rean tests and seen I had lupus and a blood clotting disorder. They said however that my level of lupus was very very mild so not to worry and people go their whole lives with lupus and my clotting disorder which is called mthfr c677t hetero that there are 5 strands of it and mine was number 3 in severity so to just take extra folic acid everyday for the rest of my life. So far I've only had the porblems with loosing the babys when it comes to my complications, but this child is doing very very well and the doc plan on everything being ok. I'm nervous thought that I'm going to become a other and then die from my clotting disorder or my lupus and I'm so scared! Can someone please give me some advice of these illnesses? Thank you so much for your answers!!
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Best Answers: i have lupus pls help me!?

Trudy Trudy | 10 days ago
I have a clotting disorder. Factor V Leiden. I have two children and I am really healthy. I had a DVT during my first pregnancy. So I was on blood thinners (Lovenox injections) for the rest of that pregnancy and the entire time with my second child. All is fine. We are all three healthy as can be. I would not be too concerned, although I know it is a bit scary. Lots of woman have clotting disorders while pregnant. It is good that you know so you can take care of yourself. You should be aware of the signs of a clot- pain (generally in the thigh or the calf) swelling, discoloration (generally redness of the area) and warm to the touch. If you have one or more of these warning signs then you should call your doctor immediately. As quick attention can save your life and the life of your baby. That is how I survived my clot. I knew the signs of a clot and when it happened to me I got help fast. As for the Lupus. My uncle has had severe Lupus for thirty years. For the last 10 years the disease has been in what is considered remission. So he is doing just fine. With good medical care Lupus is very treatable. Take care.
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Trudy Originally Answered: Lupus.one Dr. says YES, the other says maybe?
Lupus is very difficult to diagnose. It's not easy as 123. There is not a definitive test that can accurately diagnose the disease. Blood tests are not definitive of a lupus diagnosis.. they're only pieces of this puzzle. Lupus is a great imitator which is why it's important to have all other diseases/syndromes ruled out FIRST, once everything else is cleared and you still have symptoms, look at lupus. A positive RH factor refers to your blood type- A+, O+, etc. Do you mean a positive rheumatoid factor? A positive ANA is a piece of the overall puzzle but a small piece. A certain percentage of the population has a positive ANA and has no health problems, while you can have a negative ANA and still have lupus. More important tests are sed rate, crp, complements, autoantibodies, etc. You need to see a rheumatologist and allow him to figure this out. No other type of doctor really understands lupus and all that it entails (which is a lot!) which you're experiencing right now- with 2 different opinions. You also do not want to use certain types of medications without the right doctor watching over you. Medications for lupus affect your immune system (lupus is an overacti ve immune system so drugs are needed to slow it down) and are serious with potentionally life altering side effects. It's very common for a diagnosis to take time. In fact, it's also common to see multiple doctors until you get the right diagnosis, I was diagnosed quickly and it still took around a year.. that was 13 years ago. I'm now 33.. it's been a long 13 years. If you contact me privately, I can send you some very helpful lupus information. It's important for your health, that you keep your mind open (to other diseases) yet press your doctors for answers. One of the best things you can do right now is to keep a health diary- note everything- how you slept, what you ate, how's the weather, did you exercise? what medications/vitamins did you take?, etc, etc. Note everything! Over time, you'll see a pattern. This diary will help your doctors get a better picture of what's going on with you. It's late so I hope this makes sense. Stay positive and contact me offline if you want to chat.

Sandie Sandie
Lupus in itself usually doesn't mean a lupus patient can't have a healthy pregnancy, but lupus patients should be stable and not in a flare before trying for a baby. Have you also been diagnosed with antiphospholipid syndrome (sticky blood) too? 1 in 5 patients have this, at this unit we refer to it as 'Hughes Syndrome' as it was discovered by Dr Hughes and his team here. See: http://www.hughes-syndrome.org/ for more information. This is usually the illness (not lupus) that causes problems, particularly miscarriage but is very treatable. Also see our new lupus documentary - watch part nine which is called Maebe's story and covers pregnancy: http://www.lupus.org.uk/information/info... this should answer a lot of pregnancy questions. We also have a free lupus nurseonline service and she can answer any further questions you might have on Lupus or APS: http://www.lupus.org.uk/onlinenurse.htm Hope that helps. Good luck.
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Noella Noella
I also suffer from lupus. You should closely monitor your pregnancy. Be sure to keep an eye on your blood pressure. I'm not sure if you'll be able to take a blood thinner to reduce the risk of clotting, but speak with your OBGYN or primary physician
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Lys Lys
Try these links - it may give you a better idea of what's going on than answers can, since there are so many forms : http://www.lupus.org/newsite/index and http://www.mayoclinic.com/ You should be under the care of a rheumatologist (specialist in inflammatory diseases), but you should also listen to your doctor. Do learn all you can, though - to be educated about any disease or condition gives you the best opportunity to be your own best advocate. Don't automatically jump to the worst case scenario - lupus comes in many forms and degrees and degrees of illness. Good luck and God bless - Ann
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Lys Originally Answered: LUPUS? please help!?
Lupus is a disease where the immune system attacks the body, especially the connective tissue and internal organs. A classic sign of Lupus is a butterfly shaped rash on the nose and face. Along with your other symptoms, it doesn't sound like lupus at all. Besides, Lupus doesn't come on that quickly. Could be measles, or a bacterial infection. You better see your doc fast.

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